I did a lot of thinking and re-thinking overnight about some of the discussions we had with the ICU doctor yesterday. And I found myself with a lot of new questions to ask.

The consultant probably didn’t know what he’d done to deserve the interrogation I gave him this morning but if I don’t ask what I need to ask, I’ll always be confused and bewildered.

A lot of my questions were around what affects what when it comes to Woody. After all, he has a lot of different things going on with his health and there seems to be some reluctance from the doctors to consider any link between them.

I even came equipped with this little diagram to ask if Woody really is this unfortunate – that he has all of these conditions but they are not related.

As always, the questions are huge and complex and so are the possible answers. But I feel quite strongly that Woody isn’t just unlucky and there may be some link between all/some of these things, alongside significant developmental delay.

We really need a chance to talk to the neurology team as we haven’t had any input from them for a long time. We do know they want to do another MRI of his brain to see if there has been any change.

Overall, Woody is more well. He’s moving more and making more noises and did some good physio today to encourage his strength and movement. Hopefully he’ll be able to get out of ICU and onto a ward soon.

His overall plan is still being discussed with various teams in Edinburgh and in Birmingham but it looks likely that the Birmingham team will want to look at his heart and shunt to establish how they interact and what should be done and when.

As the consultant said “What do we fix first?”

A very good question.