Until I had Robin, I’d forgotten how much you miss getting a good night’s sleep when you have a baby. And then the sleep deprivation is compounded by Woody becoming unwell and needing a long hospital stay. Sitting around in hospital is ridiculously exhausting, it saps your energy.

I’d somehow been getting by on very little sleep and a lot of anxious energy for the last three weeks but as of last night, I felt that I had hit a wall of exhaustion. I was so tired, I could hardly hold a thought in my head. I used hand soap to wash my face before bed last night and didn’t even realise until after I’d done it.

And Robin has a cold so was up loads in the night and when I finally brought her into bed with me, she did a huge poo and when I changed her, she weed on my bed.

Safe to say, it was not the night of good quality sleep that I needed. But Stewart had it even worse. Woody has been moved to the neurology ward. I’m so pleased he’s out of ICU but I thought he’d get a cubicle on the ward but he’s actually in a room with four bays. It’s cramped and noisy and Stewart didn’t really get any sleep by his side overnight.

We were both wrecks today but with a lot of help from family and friends, powered through the day. We got Woody into his OT chair and took him to the playroom on the ward which was good. He can’t do much in terms of moving his arms to play yet but we did a lot of music and sound so he could hear what we did. His sight hasn’t yet returned but praying that it does soon.

One thing is for sure – he is getting physically stronger every day. He keeps trying to engage his core to sit up and he can hold his head a lot better now.

And tonight he said “yeah” which is really his first proper word other than “mama”. The start of meaningful verbal communication which is amazing.

Through the fog and heaviness of sleep deprivation, we did have a better day and saw some progress. Just crossing my fingers that we all sleep better tonight. I’ve realised quite how much more bleak everything looks when I am in need of good sleep.

I just wish we were all together.