One of our greatest concerns for Woody right now is his vision. He hasn’t appeared to be able to see since he became seriously unwell almost three weeks ago. Obviously the senses can be affected when your brain sustains some sort of damage and the neurologist explained to me that sight is the sense that uses most of the brain, so it’s quite common for it to be affected.
Sight isn’t just about what you see, it’s about how you interpret what you see. Shapes, light and movement only make sense because we become familiar with the backdrop – our world around us. Woody’s brain may not be allowing him to see, or it may not be allowing him to access that backdrop to make sense of what his eyes can actually register.
Either way, it’s a huge concern and every day, we’re checking if he responds to lights or colourful books. At times, I think he can see things but then I wonder if I’m just seeing it because I so desperately want to.
That aside, Woody has done tremendously well today. He is physically stronger and his emotions seem a little more like his own. With Stewart’s support, he put his feet down to stand and took his own weight.
We used his chair to get him out to the playroom and the sensory room. And he got his cannula out of his arm, so that’s one less thing to irritate him.

It’s a daunting week ahead – Stewart is returning to work (at least for partial hours), Robin starts nursery properly, four full days a week. Woody will have an MRI scan again. I just feel really nervous about what the week will bring.